Caregiving, Illness & Grief Support

50 Something Info
An extensive Search Engine and Directory of Health, Education, Insurance, Entertainment for Men and Women Over 50.

Alliance of Grandparents, a Support in Tragedy

Administration on Aging (AoA), Dept. of Health & Human Services
Educates older people and their caregivers about available benefits and services, including referral and outreach efforts at the community level.

ALS Association, MA Chapter
Please contact to make a donation to: “The Peter & Terry Wise ALS Fund”

ALS Association, National Office

ALS Family Charitable Foundation, Inc.

ALS Care
A comprehensive website of resources for home healthcare issues.  Materials to train and organize caregivers and health professionals.

ALS Therapy Development Institute

Alzheimer’s Association
Nationwide network of local chapters that provide support, education, and practical programs for individuals and families dealing with Alzheimer’s. 

Caregiver support information.

American Academy of Home Care Physicians
Nationwide listing of physicians who perform house calls.

American Cancer Society
Resources and support programs for patients and survivors.

Assisted Living Directory
A national and state-by-state directory that provides information and resources about Assisted Living Facilities and Senior Care.

Association of Death Education Counseling
Information for those suffering from loss of a loved one, grief management.

Befrienders International
Has a directory of suicide hotlines and crisis centers worldwide.
Provides online access to books that have been scanned for people with mobility limitations that interfere with holding or turning pages, people who are blind or have severe visual impairments, people with learning disabilities such as dyslexia, and other print disabled individuals. 

Camp Forget-Me-Not (The Wendt Center)
Free weekend sleep-away bereavement camp for area youth ages 6-15 who have experienced the death of a loved one. 


Caring Today Magazine
Resources and advice for family caregivers on the issues faced when providing care for family and/or aging parents.

The Center for Hospice & Palliative Care

The Centering Corporation (and Grief Digest Magazine)
Education and resources for the bereaved.

Christopher Reeve Paralysis Foundation 

CJ Foundation for SIDS 

The Comfort of Home
The Educated Caregiver video series, Trainer’s Presentation Kits, Mini-Guides for care-giving.

The Compassionate Friends 

Resources for people facing life-limiting illness, families & professional caregivers. Dying
Resources and tips about various subjects, including illnesses, mental health, fitness and wellness.

eHope Foundation
Helps create and organize free, non-medical, day-to-day, physical, social and emotional support networks for people with life-threatening illnesses and their caregivers.  Once the “network” is formed, a website is set up for each ill person with lists of what needs to be done, who has agreed to do them, contact info, and info about the person’s condition. 

Eldercare Locator
U.S. Administration on Aging service that provides a directory for elders and caregivers to locate support. 

Elizabeth Kubler-Ross Foundation 

Empowering Caregivers 

Family Caregiver Alliance
Helps families and caregivers of adults with neurological disorders and diseases. Includes online support group and caregiver consultation. 

Good Grief Program – Pediatrics
Training, consultation, and crisis intervention in the area of children’s bereavement (sibling bereavement, chronic illness of a family member, adolescent suicide,etc.) 

Internet community of persons dealing with grief, death, and major loss.  A companion site, KIDSAID, provides a safe environment for kids and their parents to find information and ask questions. 

Grief Resources
Crisis & healing resources. 

Growth House, Inc.
Internet portal to international resources for life-threatening illness and end-of-life care.  Their mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration. 

Hole in the Wall Camps
Free camps for children with serious illnesses and life threatening conditions. Founded by actor Paul Newman. 

Home Healthcare Agencies
Nationwide, state-by-state home health care directory. 

Hospice Foundation of America 

Hospice Net 

Innovations in End-of-Life Care
International, on-line journal features peer-reviewed practices in end-of-life care, useful tools, selected bibliographies, and other resources. 

International Alliance of ALS/MND Associations
A group of more than 50 patient support and advocacy groups worldwide. 

Lance Armstrong Foundation

Living Will Registry
A service to store and access living wills. 

Make-A-Wish Foundation
Grants wishes of children with life-threatening medical conditions. 

Michael J. Fox Foundation for Parkinson’s Research 

Muscular Dystrophy Association
Partnership between scientists and citizens aimed at conquering neuromuscular diseases that affect more than a million Americans. 

National Academy of Elder Law Attorneys (Elder Law Attorney Locator)
Information, education, networking and assistance to lawyers, bar organizations and others who provide legal services to older clients and their families, and people with special needs. 

National Adult Day Services Association
Directory and guides for selecting adult day centers. 

National Alliance for Caregiving
Provides support to family caregivers and professionals. 

National Association of Area Agencies on Aging (N4A)
655 area agencies on aging (AAAs).  Coordinates & supports home and community-based services, referral, home-delivered meals, transportation, employment services, senior centers, adult day care and long-term care ombudsman program. 

National Association of State Units on Aging (SUA)
Represents the nation’s 56 state and territorial agencies on aging to advance the needs of aging populations, adults with disabilities and their families.  Map of U.S. to click on each state.

National Association of Social Workers (NASW)

National Association of Social Workers Foundation (NASWF)
Administers programs to enhance well-being of individuals, families & communities. 

National Center for Death Education
An educational center dedicated to promoting knowledge and understanding in the field of Thanatology. On-site and on-line continuing education programs on death and grief.

National Family Caregivers Association
Grassroots organization to empower, educate, support, and speak up for the millions of Americans who care for a chronically ill, aged, or disabled loved ones. 

National Family Caregiver Support Program (NFCSP)
Resources for families, caregivers, and professionals.  Includes Caregiver Tips and Fact Sheets, Financial Steps Sheets, state facts at a glance, studies, NFCSP State Contacts.

National Hospice & Palliative Care Organization (NHPCO) 

National Long Term Care Ombudsmen Resource Center
Advocates for residents of nursing homes and assisted living.  Information to find facilities and address complaints.  Searchable by state.

National Multiple Sclerosis Society
Resources include literature explaining The American with Disabilities Act, press room with breaking news on scientific advances, and a comprehensive PDF file sourcebook with information on symptoms and treatments. 

National Organization for Rare Disorders (NORD)
Resources include database of more than 1,100 diseases and organizations, FDA orphan products designations and approvals, organizational database for support groups. 

National Partnership for Women and Families
Promotes fairness in the workplace, access to quality affordable healthcare, and policies that help women and men meet the dual demands of work and family. 

National Respite Locator Service
A service to help caregivers and professionals find respite services in their state or local area.  This might be useful for caregivers and patients who plan to travel or move out of state. 

Partnership for Caring
Publications to assist individuals with decision making about end-of-life care and treatment and provides state-specific advance directives. 

Pet Loss Support
State-by-state lists of support groups, counselors, hotlines, pet cemeteries, and links to organizations and resources for pet loss support and services. 

Promoting Excellence in End-of-life Care
Dedicated to long-term changes to improve health care for dying persons & families. 

Robert Wood Johnson Foundation 

Ronald McDonald House Charities
Provides a “home away from home” for families of seriously ill children receiving treatment at nearby hospitals.

Senior Homes
A free resource for finding local senior homes, including nursing homes, assisted living, memory care and retirement communities.

Share the Care 

Spastic Parapalegia Foundation, Inc. (SPF)
Dedicated to finding cures for Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS), and to provide information and support services.

Today’s Caregiver Magazine On-Line
Caregiver Media Group provides information, support and guidance for family and professional caregivers.  Includes topic-specific newsletters, on-line discussion lists, and chat rooms. 

Visiting Nurse Associations of America (VNAA)
Home health organization that provides compassionate, quality and cost-effective home care.  Search for VNAs by state. 

Well Spouse Foundation
Provides support to wives, husbands & partners of the chronically ill and disabled.

Whispering Hope Ranch
Offers children and families with physical or developmental challenges a Ranch-style retreat with programs to foster interactions with animals who have physical limitations or were abandoned or mistreated.  Bereavement, cerebral palsy, cancer, muscular dystrophy, craniofacial conditions, developmental disabiities, autism, epilepsy, AIDS, colitis, homelessness, etc.

Note: These links are provided for informational purposes only. The appearance of external hyperlinks is not an endorsement of these websites or any of the information contained therein.